- Black History Month 2025: Dr. Charles F. Whittenby Emma Day on February 7, 2025 at 4:48 pm
Our first #SCDHistoryHighlight for Black History Month brings attention to the life and work of SCDAA co-founder Dr. Charles F. Whitten. Dr. Whitten was a pediatric hematologist whose dedication to supporting the health of sickle cell patients paved the way for advances in screening, education and more. His pioneering work makes him one of the most The post Black History Month 2025: Dr. Charles F. Whitten appeared first on Sickle Cell Disease Association of America Inc..
- MARAC Statement: ASH Report on Exercise and SCT Crisis Riskby Emma Day on February 6, 2025 at 6:45 pm
Feb. 5, 2025 – On January 30, 2025, the American Society of Hematology (ASH) published a report that found no evidence to support that physical activity can cause sudden death for individuals with sickle cell trait (SCT) without rhabdomyolysis (muscle breakdown) or heat injury. The article also found that there is not a high-level of The post MARAC Statement: ASH Report on Exercise and SCT Crisis Risk appeared first on Sickle Cell Disease Association of America Inc..
- Editas Medicine Announces Strategic Transitionby Emma Day on January 24, 2025 at 8:32 pm
Editas Medicine recently announced that they will be making a strategic transition to a in vivo gene editing company. The company intends to develop a transformative in vivo medicine for the treatment of sickle cell disease and beta thalassemia. To learn more, read their FAQs. The post Editas Medicine Announces Strategic Transition appeared first on Sickle Cell Disease Association of America Inc..
- SCDAA Statement on Recent Natural Disastersby Emma Day on January 13, 2025 at 5:23 pm
SCDAA stands in solidarity with the warriors, advocates and community-based organizations who have been recently affected by natural disasters, including the devasting wildfires in California and the many hurricanes which hit southern states in the fall. As we pray for a speedy recovery, we send our sincere gratitude to the emergency response teams who worked The post SCDAA Statement on Recent Natural Disasters appeared first on Sickle Cell Disease Association of America Inc..
- In Memory of Frank Reddickby Emma Day on January 2, 2025 at 7:29 pm
It is with great sadness that SCDAA shares the news of the passing of Frank Reddick on Dec. 23, 2024. Frank was the president and CEO of the Sickle Cell Disease Association of Florida, an SCDAA member organization headquartered in Tampa. He was a steadfast sickle cell advocate and was the head of the Florida The post In Memory of Frank Reddick appeared first on Sickle Cell Disease Association of America Inc..
- SCDAA Statement: CMS Cell and Gene Therapy Access Modelby Emma Day on December 5, 2024 at 9:09 pm
Nearly one year ago, the Food and Drug Administration (FDA) approved two new gene therapies for the treatment of sickle cell disease. The Sickle Cell Disease Association of America Inc. (SCDAA) is pleased that the manufacturers of these two FDA-approved gene therapy treatments have entered into agreements with the Centers for Medicare & Medicaid Services The post SCDAA Statement: CMS Cell and Gene Therapy Access Model appeared first on Sickle Cell Disease Association of America Inc..
- SCDAA names board officersby Emma Day on November 20, 2024 at 9:42 pm
The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell disease, named new board officers: Dr. Edward Donnell Ivy as chief medical officer, Dr. Crawford Strunk as vice chief medical officer and Adeyinka O. Ogunlegan as secretary. Dr. Edward Donnell Ivy (left) is The post SCDAA names board officers appeared first on Sickle Cell Disease Association of America Inc..
- MARAC Statement: Pfizer’s Voxelotor (Oxbryta®) Withdrawalby Emma Day on September 28, 2024 at 9:31 pm
SCDAA Medical and Research Advisory Committee (MARAC) Statement: Pfizer’s Voxelotor (Oxbryta®) Withdrawal 9/27/24 What is the news? Pfizer announced the withdrawal of voxelotor (Oxbryta®) from national and global markets on September 25, 2024. Clinical research was also stopped. “Pfizer’s decision is based on the totality of clinical data that now indicate the overall benefit of The post MARAC Statement: Pfizer’s Voxelotor (Oxbryta®) Withdrawal appeared first on Sickle Cell Disease Association of America Inc..
- Sickle Cell Awareness Month 2024by Emma Day on August 21, 2024 at 6:10 pm
All across the country, our member organizations are hosting exciting events for Sickle Cell Awareness Month this September. Check out the list below to find an event near you. Alabama Sept. 22: Annual Sickle Cell Walk-A-Thon | Dothan, AL Hosted by the Southeast Alabama Sickle Cell Association, Inc. California Sept. 18-21: 16th Annual SCD Educational Summit | The post Sickle Cell Awareness Month 2024 appeared first on Sickle Cell Disease Association of America Inc..
- CHW P.O.W.E.R Awardby Emma Day on August 19, 2024 at 2:46 pm
CLICK HERE TO LEARN MORE AND MAKE A NOMINATION Do you know a community health worker who exemplifies excellence and commitment to the sickle cell community? Nominate them for a SCDAA P.O.W.E.R CHW Award! The deadline to nominate someone is Friday, August 23. Awards will be granted during the Annual National Convention in October. The post CHW P.O.W.E.R Award appeared first on Sickle Cell Disease Association of America Inc..
Newspeterparker2023-04-08T16:53:47-05:00