• MARAC Statement on Influenza
    by Emma Day on December 7, 2022 at 7:16 pm

    December 6, 2022 — The Sickle Cell Disease Association of America (SCDAA) Medical and Research Advisory Committee (MARAC) shares the following: For individuals with sickle cell disease and their caregivers What is influenza, and why should I worry about it? Influenza (“flu”) is a contagious viral infection that can cause severe medical problems in anyone. The post MARAC Statement on Influenza appeared first on Sickle Cell Disease Association of America Inc..

  • Midterm Election Outcomes and What they Mean for SCD
    by Emma Day on December 2, 2022 at 9:41 pm

    An update from John Otsuki, SCDAA government relations manager As I am sure you’re aware, the United States recently completed a midterm election. All members of the House of Representatives were up for election or re-election, as they are every 2 years, as were 34 Senators (roughly 1/3 of the total).  Before the election, the The post Midterm Election Outcomes and What they Mean for SCD appeared first on Sickle Cell Disease Association of America Inc..

  • NFL players spotlight Sickle Cell Disease Association of America
    by Emma Day on December 2, 2022 at 6:09 pm

    The NFL’s My Cause My Cleats campaign features players showcasing important causes on their cleats each year during Week 13 games in early December. San Francisco 49ers running back Tevin Coleman and Arizona Cardinals linebacker Markus Golden will support the Sickle Cell Disease Association of America through the NFL’s My Cause My Cleats program by The post NFL players spotlight Sickle Cell Disease Association of America appeared first on Sickle Cell Disease Association of America Inc..

  • MARAC Encourages Clinical Research Studies
    by Emma Day on October 19, 2022 at 6:25 pm

    The Sickle Cell Disease Association of America (SCDAA) Medical and Research Advisory Committee (MARAC) believes that progress in sickle cell disease (SCD) is tied to clinical trials and comprehensive care. For this reason, we encourage individuals with SCD to consider participating in research. It’s because thousands of courageous children and adults with sickle cell disease The post MARAC Encourages Clinical Research Studies appeared first on Sickle Cell Disease Association of America Inc..

  • Frequently Asked Questions about SCT in Newborn Screening
    by Emma Day on September 30, 2022 at 5:58 pm

    Many people have questions about sickle cell trait after newborn screening. Dr. Lewis Hsu, SCDAA chief medical officer, answers some of the FAQs below. Can this test be wrong? The standard process for newborn screening is that a result showing sickle cell trait will be followed up with another blood test – so two tests The post Frequently Asked Questions about SCT in Newborn Screening appeared first on Sickle Cell Disease Association of America Inc..

  • New Publications Emphasize Inequities in Pediatric SCD Care
    by Emma Day on September 22, 2022 at 8:05 pm

    This week, two new publications call attention to the barriers to care children with SCD face. Prioritizing Sickle Cell Disease, an article co-authored by SCDAA Chief Medical Officer Lewis Hsu for the American Academy of Pediatrics, is a call to action within the medical community to work together to maximize available screenings and treatments. The Centers for The post New Publications Emphasize Inequities in Pediatric SCD Care appeared first on Sickle Cell Disease Association of America Inc..

  • MARAC Advisory Statement: Immunizations
    by Emma Day on August 31, 2022 at 5:53 pm

    August is National Immunization Awareness Month. What does that mean for individuals with sickle cell disease (SCD)? The Big Picture from SCDAA MARAC Individuals with sickle cell disease are more likely to have complications from many infections and receive a lot of benefit from immunizations. Family members can help protect a child or adult with The post MARAC Advisory Statement: Immunizations appeared first on Sickle Cell Disease Association of America Inc..

  • Tools for Sickle Cell Awareness Month You Don’t Want to Miss
    by Emma Day on August 29, 2022 at 9:11 pm

    September is Sickle Cell Awareness Month. Check out these helpful tools and learn more about how to support sickle cell warriors! For Schools https://www.chop.edu/health-resources/sickle-cell-school-outreach For Employers https://askjan.org/disabilities/Sickle-Cell-Anemia.cfm https://askjan.org/publications/Disability-Downloads.cfm?pubid=969229&action=download&pubtype=pdf For Emergency Medicine https://www.acep.org/patient-care/sickle-cell/ For Hospitalists https://www.hospitalmedicine.org/clinical-topics/sickle-cell-disease/Sickle-Cell-Implementation-Form/ For Blood Transfusion https://www.cdc.gov/ncbddd/sicklecell/betterhealthtoolkit/blood-transfusions.html About Sickle Cell Trait https://www.cdc.gov/ncbddd/sicklecell/toolkit.html For Advocacy https://www.nationalacademies.org/news/2020/09/improving-health-outcomes-for-sickle-cell-disease-care-requires-comprehensive-team-based-care-new-payment-models-and-addressing-institutional-racism-in-health https://nichq.org/campaign/national-sickle-cell-awareness-month-2022 Looking for more? Visit oneSCDvoice’s Sickle Cell The post Tools for Sickle Cell Awareness Month You Don’t Want to Miss appeared first on Sickle Cell Disease Association of America Inc..

  • Member Organization Sickle Cell Awareness Month Events 2022
    by Emma Day on August 29, 2022 at 8:49 pm

    Join an SCDAA member organization at one of these great events this September! The Amazing Race 5K/1K | Starts September 1 | Virtual Hosted by Sickle Cell Houston Virtual Walk Across Texas | September 3 | Virtual Hosted by the Sickle Cell Association of Texas Marc Thomas Foundation National Sickle Cell Month Press Conference | September 6 | The post Member Organization Sickle Cell Awareness Month Events 2022 appeared first on Sickle Cell Disease Association of America Inc..

  • Urge Officials to Cosponsor the SCD Comprehensive Care Act
    by Emma Day on August 24, 2022 at 9:07 pm

    Dear Sickle Cell Community, Over the past several months, SCDAA has been working with congressional sickle cell disease (SCD) champions and other community and provider groups to advance bipartisan legislation to improve care for individuals with SCD. The Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S. 3389) authorizes the Centers for Medicare and The post Urge Officials to Cosponsor the SCD Comprehensive Care Act appeared first on Sickle Cell Disease Association of America Inc..