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All across the country, our member organizations are hosting exciting events for Sickle Cell Awareness Month this September. Check out the list below to find an event near you. Alabama Sept. 5: Sickle Cell Awareness Month Blood Drive | Fairfield, AL Hosted by the Sickle Cell Disease Association of America, Central Alabama Chapter Sept. 12: The post Sickle Cell Awareness Month 2023 Events appeared first on Sickle Cell Disease Association of America Inc..

This morning, we were notified that some users experienced issues using our 2023 National Abstract Competition portal. This issue has been remedied. SCDAA is accepting abstract submissions until 11:59 p.m. PST, July 17, 2023. If you tried to submit an abstract earlier today and encountered a problem, please click here to resubmit your work before The post Abstracts Accepted Until 11:59 p.m. PST appeared first on Sickle Cell Disease Association of America Inc..

July 7, 2023 – SCDAA’s Medical and Research Advisory Committee (MARAC) notes that the European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) recommended on May 26, 2023, that the conditional marketing authorization for crizanlizumab (Adakveo) be revoked. The EMA stated that this revocation was triggered by the findings of the Novartis The post MARAC Statement: Crizanlizumab (Adakveo) appeared first on Sickle Cell Disease Association of America Inc..

Sickle Cell Disease Association of America Teams with MedicAlert Foundation to Improve Emergency Outcomes During Sickle Cell Crises Nonprofits partner to help people with sickle cell disease get faster, better emergency care. The Sickle Cell Disease Association of America, the leading patient organization for people with sickle cell disease, announced a pilot program with MedicAlert The post SCDAA Teams with MedicAlert Foundation appeared first on Sickle Cell Disease Association of America Inc..

Dublin, Ireland, 19 June 2023: Afimmune, a clinical stage biopharmaceutical company developing novel rare disease therapeutics, today announced it has been invited to join the Sickle Cell Disease Association of America’s (SCDAA) Collaboration of Advocates for Research, Education and Science (C.A.R.E.S.) Consortium. The mission of this initiative is to raise awareness about the importance of clinical trials and why The post Afimmune joins the SCD C.A.R.E.S. Consortium appeared first on Sickle Cell Disease Association of America Inc..

CMO Speaks is a blog featuring the voices of SCDAA’s clinical leadership team. Part 1 of our Gene Therapy series was written by Dr. Lewis Hsu and Dr. Sri Lakshmi Jamalapur. How can you cure an inherited disease like sickle cell disease? One way would be to develop some extremely effective medications that would alleviate The post CMO Speaks: Gene Therapy for SCD (Part 1) appeared first on Sickle Cell Disease Association of America Inc..

Did you know that the federal government is poised to make some of the biggest decisions in sickle cell history right now? Current pending legislation would direct an unprecedented amount of funds to sickle cell treatment, research and support. Our FY24 Legislative Priorities, developed in collaboration with Sick Cells, outline these exciting bills and requests. The post SCDAA Announces FY24 Legislative Priorities appeared first on Sickle Cell Disease Association of America Inc..

Maryland Governor Wes Moore has signed a proclamation to make June 19, 2023, Sickle Cell Awareness Day! This recognition goes a long way in raising awareness about sickle cell disease, combating prejudices and lifting up our community. Thank you for supporting our cause and helping us to “Shine the Light on Sickle Cell Disease!” The post June 19, 2023, is Officially Sickle Cell Awareness Day in Maryland! appeared first on Sickle Cell Disease Association of America Inc..

The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell disease, named Kristen Cox as member engagement coordinator. The association has more than 50 member organizations throughout the United States. Prior to joining the Sickle Cell Disease Association of America, Cox served as the membership The post SCDAA hires member coordinator appeared first on Sickle Cell Disease Association of America Inc..

This #WomensHistoryMonth, we are highlighting prominent women who have made lasting contributions to the SCD community. #WomenInMedicine #WomensHistoryMonth  Meet Dr. Marilyn Hughes Gaston, an internationally recognized leader in health care equality and sickle cell disease advocacy. Since 1976, she has dedicated her career to improving medical care for poor and minority families and has contributed The post Women’s History Month: Dr. Marilyn Hughes Gaston appeared first on Sickle Cell Disease Association of America Inc..