News

The World Health Organization (WHO) recently published a comprehensive package of interventions for sickle cell disease management in Africa. The package outlines a holistic and integrated approach to disease management. This information is useful for the general context of sickle cell advocacy. Current and former members of SCDAA’s Medical and Research Advisory Committee (MARAC) were The post WHO Publishes New Guidelines for SCD Management in Africa appeared first on Sickle Cell Disease Association of America Inc..

The success of any organization, for profit or not for profit, is measured by its leadership. As organizational leaders, we value the commitment, vision and passion our board members bring. The board of directors for Sickle Cell Disease Association of America Inc. (SCDAA) looks to those who serve–or have served–so passionately, to nominate qualified individuals The post Board Members Needed! appeared first on Sickle Cell Disease Association of America Inc..

Know Your Rights in the Emergency Department – Biden Administration Releases New Guidance The Centers for Medicare & Medicaid Services (CMS) is promoting new resources to remind individuals about their rights in the emergency room. Under the Emergency Medical Treatment and Labor Act, better known as EMTALA, all hospitals that participate in the Medicare program The post SCDAA Statement: Know Your Rights in the ER appeared first on Sickle Cell Disease Association of America Inc..

SCDAA joins the National Medical Association, the American Medical Association, the American Association of Medical Colleges, and other groups, in advocating for DEI programs in medical institutions. Sickle cell disease (SCD) is a serious and complex disease that affects a disproportionate amount of people of color in the United States. As such, it exists in The post Statement on the Inclusion of DEI in Medical School Curriculum appeared first on Sickle Cell Disease Association of America Inc..

It is with great sadness that SCDAA shares the news of the passing of Monica Rockwell, executive director of SWGA Sickle Cell Awareness, on April 10, 2024. Monica was a tireless advocate and dedicated community health worker. She was a steadfast supporter of SCDAA’s education and outreach efforts and worked with Kevin Amado, our Senior The post In Memory of Monica Rockwell appeared first on Sickle Cell Disease Association of America Inc..

The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell disease, promoted Kevin Amado Jr. to senior community impact and education manager. Amado joined the association in 2020 and brings 20 years of experience as a health educator, case manager, community health worker and The post SCDAA promotes Kevin Amado Jr. appeared first on Sickle Cell Disease Association of America Inc..

During our 50th Annual National Convention in 2023, SCDAA was proud to exhibit the artwork of Hertz Nazaire at a pop-up exhibit. Known for his advocacy work and “Finding Your Colors” adult coloring book series, Hertz created mixed-media visual art reflective of his personal experiences with pain and sickle cell disease. He died of sickle The post The Nod to “Naz” Exhibit appeared first on Sickle Cell Disease Association of America Inc..

Welcome to CMO Speaks, a blog featuring the voices of SCDAA’s clinical leadership team. This article was written by Dr. Lewis Hsu, SCDAA’s chief medical officer, with gratitude for input from many sickle cell warriors. Sickle Cell Warriors Get Hurt When Cyberattacks Hit Large Health Care Companies A national cybersecurity incident recently caused certain pharmacy The post CMO Speaks: Cyberattacks on Health Care Companies appeared first on Sickle Cell Disease Association of America Inc..

SCDAA is pleased to announce that we have joined the Insitute for Gene Therapies (IGT) Patient Advocacy Advisory Council. IGT advocates for a modernized regulatory and reimbursement framework that encourages the development of transformative gene therapies and promotes patient access. SCDAA is proud to support this mission as an advisory council member. Learn more about The post SCDAA Joins the IGT Patient Advocacy Advisory Council appeared first on Sickle Cell Disease Association of America Inc..

HELP US REACH OUR GOAL – DONATE TODAY Did you know that February 29 is Rare Disease Day? This important event is dedicated to raising awareness for patients, families and caregivers around the world affected by rare diseases like sickle cell disease. As Rare Disease Day approaches, the Sickle Cell Disease Association of America, Inc., The post 15K in a Day for Rare Disease Day 2024 appeared first on Sickle Cell Disease Association of America Inc..