December 6, 2022 — The Sickle Cell Disease Association of America (SCDAA) Medical and Research Advisory Committee (MARAC) shares the following: For individuals with sickle cell disease and their caregivers What is influenza, and why should I worry about it? Influenza (“flu”) is a contagious viral infection that can cause severe medical problems in anyone.
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An update from John Otsuki, SCDAA government relations manager As I am sure you’re aware, the United States recently completed a midterm election. All members of the House of Representatives were up for election or re-election, as they are every 2 years, as were 34 Senators (roughly 1/3 of the total). Before the election, the
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The NFL’s My Cause My Cleats campaign features players showcasing important causes on their cleats each year during Week 13 games in early December. San Francisco 49ers running back Tevin Coleman and Arizona Cardinals linebacker Markus Golden will support the Sickle Cell Disease Association of America through the NFL’s My Cause My Cleats program by
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The Sickle Cell Disease Association of America (SCDAA) Medical and Research Advisory Committee (MARAC) believes that progress in sickle cell disease (SCD) is tied to clinical trials and comprehensive care. For this reason, we encourage individuals with SCD to consider participating in research. It’s because thousands of courageous children and adults with sickle cell disease
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Many people have questions about sickle cell trait after newborn screening. Dr. Lewis Hsu, SCDAA chief medical officer, answers some of the FAQs below. Can this test be wrong? The standard process for newborn screening is that a result showing sickle cell trait will be followed up with another blood test – so two tests
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This week, two new publications call attention to the barriers to care children with SCD face. Prioritizing Sickle Cell Disease, an article co-authored by SCDAA Chief Medical Officer Lewis Hsu for the American Academy of Pediatrics, is a call to action within the medical community to work together to maximize available screenings and treatments. The Centers for
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August is National Immunization Awareness Month. What does that mean for individuals with sickle cell disease (SCD)? The Big Picture from SCDAA MARAC Individuals with sickle cell disease are more likely to have complications from many infections and receive a lot of benefit from immunizations. Family members can help protect a child or adult with
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September is Sickle Cell Awareness Month. Check out these helpful tools and learn more about how to support sickle cell warriors! For Schools https://www.chop.edu/health-resources/sickle-cell-school-outreach For Employers https://askjan.org/disabilities/Sickle-Cell-Anemia.cfm https://askjan.org/publications/Disability-Downloads.cfm?pubid=969229&action=download&pubtype=pdf For Emergency Medicine https://www.acep.org/patient-care/sickle-cell/ For Hospitalists https://www.hospitalmedicine.org/clinical-topics/sickle-cell-disease/Sickle-Cell-Implementation-Form/ For Blood Transfusion https://www.cdc.gov/ncbddd/sicklecell/betterhealthtoolkit/blood-transfusions.html About Sickle Cell Trait https://www.cdc.gov/ncbddd/sicklecell/toolkit.html For Advocacy https://www.nationalacademies.org/news/2020/09/improving-health-outcomes-for-sickle-cell-disease-care-requires-comprehensive-team-based-care-new-payment-models-and-addressing-institutional-racism-in-health https://nichq.org/campaign/national-sickle-cell-awareness-month-2022 Looking for more? Visit oneSCDvoice’s Sickle Cell
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Join an SCDAA member organization at one of these great events this September! The Amazing Race 5K/1K | Starts September 1 | Virtual Hosted by Sickle Cell Houston Virtual Walk Across Texas | September 3 | Virtual Hosted by the Sickle Cell Association of Texas Marc Thomas Foundation National Sickle Cell Month Press Conference | September 6 |
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Dear Sickle Cell Community, Over the past several months, SCDAA has been working with congressional sickle cell disease (SCD) champions and other community and provider groups to advance bipartisan legislation to improve care for individuals with SCD. The Sickle Cell Disease Comprehensive Care Act (H.R. 6216 / S. 3389) authorizes the Centers for Medicare and
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